AGING HEALTHY WITH MS 1
AgingHealthy with MS
Participatory Action Research (PAR) creates a situation where ethicalguidelines are compromised (Lawson, Caringi, Pyles, Bozlak,Jurkowski, & Bozlak, 2015). In this regard, participants maypresent significant challenges to a solid project plan. Therefore, aresearcher must gain the support and trust of persons and groupsinvolved in the PAR to foster ethical guidelines.
An in-depth PAR study on aging healthy with MS could cause severalchanges. Firstly, participants may manifest reluctance towardssharing personal details. The stigma associated with seekingtreatment causes many people to avoid exposure (Ungar, McGrath,Black, Sketris, Whitman, & Liebenberg, 2015). Hence, the studywould use actual details from anonymous participants. Secondly, theresearcher may need to provide guarantees of privacy andconfidentiality. Many participants may be hampered due to thedebilitating effects of MS (Ungar et al., 2015). Therefore, theresearcher could require the help of family members to acquire data.
Furthermore, it is critical to encourage empowerment through advocacyand leadership. Such efforts must be modified to fit the particularneeds of persons involved in the PAR (Lawson et al., 2015). As aresearcher, I will manifest leadership by initiating communicationwith participants. In particular, I will suggest items that couldpossibly form part of the discussion. The participants will have theopportunity to state other pertinent factors. Showing leadership inthis manner will encourage collaboration between both parties. Inaddition, I will manifest advocacy by working to address theparticipants’ concerns. It is also important to seek the help ofother professionals and hence encourage empowerment.
Stakeholder reports would differ in content and presentation forpersons aging healthy with MS. Participants who adopt and maintainethical guidelines will have greater involvement in the study (Lawsonet al., 2015). Hence, the resultant stakeholder reports would coverless personal aspects. The presentation will also seek to safeguardthe identities of participants.
Indeed, a researcher must gain the trust of participants to encouragethe adoption of ethical guidelines. Conducting an in-depth PAR studycould heighten the relevance of ensuring privacy and confidentiality.It may also lead to increased reluctance towards sharing personaldetails. Nevertheless, a researcher can show leadership and advocacyto encourage communication and collaboration.
Lawson, H. A., Caringi, J., Pyles, L., Bozlak, C. T., Jurkowski, J.,& Bozlak, C. (2015). Participatory Action Research. OxfordUniversity Press, USA.
Ungar, M., McGrath, P., Black, D., Sketris, I., Whitman, S., &Liebenberg, L. (2015). Contribution of participatory action researchto knowledge mobilization in mental health services for children andfamilies. Qualitative Social Work, 14(5), 599-615.